THE OUTSIDER
I'm handicapped and wheelchair bound
Expected to sit and not make a sound
Just to smile and let the World go by
With Saintly patience and never sigh.
Inside my head thoughts come and go
Ideas are born which long to flow
Flow from my lips and link me with others
But my words sound strange so no one bothers.
My tongue and lips do not as I ask
I cannot perform the simplest task
But I have a mind and I'm still there
Don't lock me out in your ignorance there.
Talk, though I seem not to understand
Touch me, include me, and hold my hand
I am alive and I have time to give
Let me share in the life I was given to live.
About Me
- Timothy Ethan
- I am the Momma of 8 children. Seven here on earth and 1 precious little Angel in Heaven. My children range in age from 2 months to 25 years. My 6 year old was born with a laundry list of complex medical conditions. He has Trisomy 21 (Down Syndrome), a rare brain malformation, which resulted from a mutation of the PAX-6 gene, bilateral anophthalmia, which means that he was born without any eyes, so he is totally blind. At the age of 2 1/2 months old he had to have a tracheostomy to help aid in his breathing. He is hearing impaired, with normal hearing in his left ear and has profound deafness in his right. At 3 1/2 years he had surgery to have a Mic-Key button placed in his stomach (feeding Tube), which is mainly used to give him his medications. He also has insulin dependant diabetes and wears an insulin pump, which gives him a continuous dose of insulin. Even with his many dis"abilities," including being globally developmentally delayed, he has accomplished more than anyone would have ever believed that he could. Join us in our journey living with a Dis"Abled" child....